Day 18 & 19: We're Moving On Up

Yesterday morning, Blair was having a hard time. She had woken up before we got back to her room and she was upset that we weren't there. When we came in her room at 7:15am, she reached out to give me a hug and said, "I want to stay with you all day today. Don't go ANYWHERE!" Since then, we've been taking turns going downstairs to eat so one of us was always with her. Last night, she refused to go to sleep unless we were sleeping in her room, so we scooted her over and I slept next to her and Spence slept in the fold-down chair. She must be feeling much better because she moved enough to kick me in the side the whole night. She did wake up a few times and was happy we were there.

All day yesterday she played and was a pretty happy little girl. Her diet was upgraded to soft foods, and she was pretty glad to get some applesauce. She did great with the applesauce and a few bites of banana at mid-morning, but she had a few bites of mashed potatoes and part of a roll last night and it all came right back up. This morning she ate some more applesauce and some yogurt and she's done fine.

Yesterday afternoon, they turned off the last of her medications that were on constant drips. She's done pretty well and only had withdrawal symptoms for a little while last night- sweating and fever. Now they're working on weaning her off the drugs that help her get off the drips. She has to be mostly off all of these before they'll send her home.

This morning, they had the doctors from the Children's Medical Unit come and check Blair to make sure they were comfortable with her moving out of the ICU. She's now moved to the third floor Children's Medical Unit room 3045. She's watching movies and eating her root beer slushie and happy as can be. Since she's come upstairs, they've turned off her oxygen totally and she's still got a high oxygen saturation level. Her nasal cannula is still sitting right by her bed in case she desaturates and needs oxygen fast.

When the doctor was in talking to us this afternoon, she said she thought we could go home as soon as Tuesday, but it may be Wednesday. We're hoping for sooner rather than later, but we want to make sure she's totally ready before we take her home.

Cuddling Dad and Mom after a sad morning

Blair has a room service menu that we order her meals from. This was her first meal in almost three weeks. When they brought her food in, she was thrilled. She looked right at Spence and said, "Are you so jealous, Dad?" We both cracked up.

Our clean little girl after a bath- I can't wait until I can just throw her in the tub again. Baths in the bed are such a pain.

Before we moved rooms, she was checking out all of the posters and cards people have sent her. They were a little hard to see when they were on her wall.

Dinner on the way in...

Practicing standing up with Dad

Happily settled in a new room watching Cinderella