Day 21: We're Headed Home

Our cute girl happy to be in her own PJs
Ready to get home

Today Spence needed to go to work so Blair and I hung out all day. It was a lot harder without Spence around because Blair doesn't like to be in her room alone even for a minute. Also, she's starting to try to move around a little more, but has no balance, so she'll sit up and try to move and about fall out of her bed. I ran downstairs for some breakfast while she was sleeping, but other than that, I didn't leave the room all day.

Blair wanted her own PJs on today, so we put them on her, but she had an accident and had to go back to the hospital gown. The poor little girl is so confused from going back to a diaper for three weeks after being potty trained for so long. Also, when she was first ex-tubated, they needed her to go in her diaper and she wouldn't. She'd hold it and wanted to go potty, but she couldn't get out of bed, so we spent all day trying to convince her she should just go in her diaper. Now we're working on getting over that and back to going in the potty 100 percent of the time.

Blair is doing great with her breathing, but they're still working on weaning her medications. They did, however, decide we could finish the weaning process from home. Tonight we were able to come home. It was a little crazy today because this morning, the doctor told us to plan on going home tonight, but later tonight, she wasn't so sure anymore. I had a total meltdown. Three weeks is a long long time and Blair is doing so great with everything that it's a major job entertaining her all day in the hospital room. They have playrooms and things for the kids to do, but since she has RSV, Blair isn't allowed to leave her room. She gets pretty tired of her bed sometimes.

It was finally decided that we could go home tonight. After a bunch of packing and getting all of the orders clear from the doctor we were on our way home at 7pm. It took a long time to go over what we need to do at home because the medication schedule and amounts given change each day during the weaning process. When I stopped at the pharmacy at the hospital to pick up her medications, the person helping me jokingly said, "It must have been a big year, you've already reached your out of pocket maximum on your insurance. You don't owe anything tonight." Yeah, I'm pretty sure due to the ambulance ride, the ER in Layton, and the helicopter ride, we reached our out of pocket maximum before we even got to Primary Children's Hospital. Thank Heaven for insurance.

Blair is in bed now upstairs by our room, I've cleaned out the fridge since mostly everything had gone bad while we were gone, I've gone to the grocery store to re-stock, but I haven't put everything away from the hospital and other random things that were left out the two times we were home for a few hours. I'll work on that in the next few days.

Tonight, we've got to set an alarm for 12am, 4am, and 8am (we're on a little bit of a late schedule from the hospital) to get up and give Blair her medicine. It's a little crazy, but I'd much rather set a few alarms and deal with waking up in the night than stay in the hospital any longer.

We are home and getting settled. Grandpa Erickson will drop Davis off in the morning and it will feel so good to have all four of us together at home.

Thank you all so much for your concern, prayers, and support during this stressful time for our family. We love you all and appreciate everything you've all done. We are not, however, going to be able to have visitors at our house for the next couple of weeks. Blair is still pretty weak and needs more time to heal. Thanks for your understanding.